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Patient Innovation - Sharing Solutions, Improving Life
Portugal ( PorMSIC) - Nova University of Lisbon, Lisbon
CEDOC - Campo de Santana
Type of Research Project
- Clinical Project without Laboratory work
What is the background of the project?
Our research in healthcare innovation has shown that patients and their caregivers often develop innovative solutions to help them cope with their health condition, which often improve their quality of life. We established an open, free, online platform ( www.patient-innovation.com ) aimed at facilitating the sharing of innovations developed by patients and caregivers. More than 1500 solutions were submitted and “screened” and over 850 innovations are available to a community of 100.000 users. The products, services, apps, etc., are screened by a medical team, before being published and displayed in the platform. The platform has the support of two Nobel Laureates who serve on our Advisory Board and other recognized international academics and scientists. Our ultimate goal is to create an ecosystem that empowers patients and their caregivers to collaborate, co-create and innovate to help improving the lives of others.
What is the aim of the project?
Search for solutions created by patients, informal caregivers or collaborators.
What techniques and methods are used?
Solutions Research and Publication in the Patient Innovation platform of solutions developed by patients, caregivers and collaborators. Technical Analysis and socio-economic analyses of the solutions on the data presented in the platform, this research allows to explore the solutions and the innovators in a systematic way. Database Management of the data presented in the platform.
What is the role of the student?
- The student will observe the practical experiments but will be highly involved in the analysis of the results
- If the project is clinical
- the student will be allowed to work with patients
What are the tasks expected to be accomplished by the student?
The students will have to research, analyze and publish several solutions in the Patient Innovation platform. Additionally, students will have to perform data analysis on the data presented in the platform. The analysis consists in assigning appropriate labels to the post. For that matter, an accurate list of keywords will ensure correct indexing and help showcase the solution to interested groups. This in turn will increase the chances of the solution being found on the PI’s platform search tool and Google. Students will also do socio-economic, technical and quality control analysis to explore the solutions and the innovators in a systematic way.
Will there be any theoretical teaching provided (preliminary readings, lectures, courses, seminars etc)
Reading of papers on user innovation Informal lectures of how patient innovation works and what they have to do to be successful in this exchange program.
What is expected from the student at the end of the research exchange? What will be the general outcome of the student?
- The student will prepare a presentation - The student will prepare a scientific report
What skills are required of the student? Is there any special knowledge or a certain level of studies needed?
Critical Thinking Interest in Technology and Innovation Some knowledge in ICT Desire to learn
Are there any legal limitations in the student’s involvement
Type of students accepted
This project accepts: - Medical students - Graduated students (less than 6 months) - Pre-Medical students from the American-British system
- Oliveira; P.; Zejnilovic; Zejnilovic; L.; Canhão; H.; von Hippel; E. (2014). Innovation by Patients with Rare Diseases and Chronic Needs.
- Oliveira; P.; Zejnilovic; Zejnilovic; L.; Canhão; H.; von Hippel; E. (2014). Patient innovation under rare diseases and chronic needs. Orphanet Journal of Rare Diseases; 9 (Suppl 1): O33.
- Zejnilovic; L.; Oliveira; P.; Canhão; H. (2017) Patient Innovation — Empowering Patients; Sharing Solutions; Improving Lives. New England Journal of Medicine Catalyst.
- Zejnilovic; L.; Oliveira P.; Canhão; H. (2017) Revolutionising Healthcare by Empowering Patients to Innovate- European Medical Journal Innovations. European Medical Journal Innovations; 1:31-34.
- Oliveira P; Zejnilovic; L.; Canhão; H. (2017) Challenges and Opportunities in Developing and Sharing Solutions by Patients and Caregivers: The Story of a Knowledge Commons for the Patient Innovation Project - Governing Medical Knowledge Commons; Cambridge University Press. pp 301-325.
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